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Discussion: Scoliosis - Arnold-Chiari Malformation, Type 2
  1. bronzedragon's Picture

    Bronze Dragon has 58 reputation points

    Posted: 9th Apr 08, 03:22 pm offline

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    Scoliosis - Arnold-Chiari Malformation, Type 2

    A friend's 13 year old son Patrick has a developing deformation of the spine, first diagnosed as scoliosis:

    "The physio guys simply said there was nothing that could be done and the surgeon followed suit and proceeded to warn us that he could be a cripple and his heart, lungs, kidneys etc would be compromised leading to his early death. So he wanted to perform two operations on Patrick's spine, one anterior, one posterior, fuse joints and insert two metal rods that would stay there for life."

    Our friend is experienced in NLP and hypnosis and started using these alongside seeking other alternatives to operation. Then he had more news yesterday:

    "Results from an MRI which we were told was clear turn out to show "Arnold-Chiari Malformation, type 2" which has complicated the issue. We are seeing a top neurosurgeon tomorrow and then we may know more about what to do next."

    If any of you have specific experience in successfully treating this condition with NLP/hypnosis/therapies - ideally successful approaches to heal this without the need for surgery - please email: patricks.cure@gmail.com.

    Many thanks,
    Susanna

  2. feelfree's Picture

    Kate van Loon has 192 reputation points

    Posted: 10th Apr 08, 06:37 pm offline

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    Re: Scoliosis - Arnold-Chiari Malformation, Type 2

    it may be worth contacting Ron and Edie Perry who do PPT. They are specialised in NLP and bodywork they're on this site.

    And keep remembering that it can get better. I've seen to many people who have heard it's uncureable who've healed themselves to believe in untreatable.

    my best friend actually had a brace for her scoliosis and kyfosis and did intensive feldenkrais treatment and she's fine now.

    Good luck
    Last edited by feelfree; 10th Apr 08 at 06:38 pm. Reason: added

    http://www.feelfree.nu

  3. Isabelle_Aubé's Picture

    Isabelle Aubé has 446 reputation points

    Posted: 10th Apr 08, 11:46 pm offline

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    Re: Scoliosis - Arnold-Chiari Malformation, Type 2

    Ron is in the UK until April 15th...you can contact joy@patternsofphysicaltransformation.com for a consult or Chris Morris and Donovan Mitchell could surely help you speak with him as well.

    Best of health!
    Isabelle

  4. bronzedragon's Picture

    Bronze Dragon has 58 reputation points

    Posted: 14th Apr 08, 12:19 pm offline

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    Re: Scoliosis - Arnold-Chiari Malformation, Type 2

    Kate and Isabelle,

    Thank you for your replies and good wishes, which I have passed on.

    My friend is already in touch with Ron and Edie Perry, and I hope will be able to get over from Europe to see them while they are in the UK.

    It's also good to know of people who have recovered through feldenkrais etc.

    Any other helpful thoughts, please email direct to patricks.cure@gmail.com as well as posting here for general info.

    I am not generally on this website and just acting as intermediary for my friend. Since I may not see any further replies, my I just thank anyone else in advance for their help.

    Best wishes,

    Susanna
    NLP, Reiki and Stress Management seminars in York / North Yorkshire, England, UK, Great Britain, GB

  5. feelfree's Picture

    Kate van Loon has 192 reputation points

    Posted: 14th Apr 08, 02:12 pm offline

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    Re: Scoliosis - Arnold-Chiari Malformation, Type 2

    He could also look into some really really good yoga teachers.

    YOGA FOR SCOLIOSIS this has a lot of questions and answers on it

    He would need to find somebody probably in the iyengar tradition , which is very much into anatomical correctness and aligment of limbs, skeletal structure and such and is really quite a lot of fun too. He would need private lessons to start with anyway and as I said, only if he has a teacher who has experience with such severe scoliosis. Yoga really adresses balance and focuses on lengtening the spine and keeping joints supple through postures and breathing.


    the great thing about yoga is that you get a great feel for your body and a good awareness of tension and relaxation in very specific parts of your body which is also very good for pain relief. So he'd be taught to counterbalance the disbalance so that it moves to an equilibrium. You'de hope to very gently make the curve less, so that there would be more length in his spine.

    And especially seen as he's so young there is a lot of room for improvement. Your muscles , bones and joints are bound to be more flexible and you can teach muscles to become strong so as to support other structures.

    One of my teachers had a hernia, quite painfull indeed and beacuse she was so aware of her body through yoga she managed to be up and going again within 2-3 months.

    http://www.feelfree.nu

  6. sam_soma's Picture

    sam s has 47 reputation points

    Posted: 31st Jan 09, 04:19 pm offline

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    Re: Scoliosis - Arnold-Chiari Malformation, Type 2

    Hanna Somatics is another therapy, like Feldenkrais( newer & partly evolved out of it)

    Go to Somatics.com, if interested in further info. on the subject.

    regards

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